[{"@context":"https:\/\/schema.org\/","@type":"Article","@id":"https:\/\/www.durit.cz\/amyotroficka-lateralni-skleroza-je-nemoci-o-ktere-neni-mnoho-slyset\/#Article","mainEntityOfPage":"https:\/\/www.durit.cz\/amyotroficka-lateralni-skleroza-je-nemoci-o-ktere-neni-mnoho-slyset\/","headline":"Amyotrofick\u00e1 later\u00e1ln\u00ed skler\u00f3za je nemoc\u00ed, o kter\u00e9 nen\u00ed mnoho sly\u0161et","name":"Amyotrofick\u00e1 later\u00e1ln\u00ed skler\u00f3za je nemoc\u00ed, o kter\u00e9 nen\u00ed mnoho sly\u0161et","description":"ALS je progresivn\u00ed nervosvalov\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje motorick\u00e9 nervov\u00e9 bu\u0148ky v mozku a m\u00ed\u0161e. D\u016fsledkem \u0161patn\u011b funguj\u00edc\u00edch nebo odum\u0159el\u00fdch motoneuron\u016f…","datePublished":"2020-09-26","dateModified":"2023-06-02","author":{"@type":"Person","@id":"https:\/\/www.durit.cz\/author\/#Person","name":"","url":"https:\/\/www.durit.cz\/author\/","identifier":1,"image":{"@type":"ImageObject","@id":"https:\/\/secure.gravatar.com\/avatar\/858bd846075fd5b8b1d4245db80ad7e97c5f6469ebe7a8ed193790395667b9ae?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/858bd846075fd5b8b1d4245db80ad7e97c5f6469ebe7a8ed193790395667b9ae?s=96&d=mm&r=g","height":96,"width":96}},"publisher":{"@type":"Organization","name":"durit.cz","logo":{"@type":"ImageObject","@id":"\/logo.png","url":"\/logo.png","width":600,"height":60}},"image":{"@type":"ImageObject","@id":"https:\/\/www.durit.cz\/wp-content\/uploads\/img_a295055_w2034_t1506687439.jpg","url":"https:\/\/www.durit.cz\/wp-content\/uploads\/img_a295055_w2034_t1506687439.jpg","height":0,"width":0},"url":"https:\/\/www.durit.cz\/amyotroficka-lateralni-skleroza-je-nemoci-o-ktere-neni-mnoho-slyset\/","wordCount":392,"articleBody":"ALS je progresivn\u00ed nervosvalov\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje motorick\u00e9 nervov\u00e9 bu\u0148ky v mozku a m\u00ed\u0161e. D\u016fsledkem \u0161patn\u011b funguj\u00edc\u00edch nebo odum\u0159el\u00fdch motoneuron\u016f je pak fakt, \u017ee mozek nedok\u00e1\u017ee svaly ovl\u00e1dat a ty postupn\u011b ochabuj\u00ed. Prozat\u00edm nebyly na tuto nemoc objeveny \u017e\u00e1dn\u00e9 l\u00e9ky vedouc\u00ed k uzdraven\u00ed. P\u00e9\u010de o pacienta je velmi n\u00e1ro\u010dn\u00e1 a i z\u00e1konn\u00fd r\u00e1mec v tom nen\u00ed bli\u017en\u00edm nemocn\u00e9ho p\u0159\u00edli\u0161 n\u00e1pomocn\u00fd. Pacienti a jejich rodiny se tak \u010dasto spol\u00e9haj\u00ed na dobrosrde\u010dnost lid\u00ed, a\u0165 u\u017e na \u00fa\u0159adech nebo v ostatn\u00edch slu\u017eb\u00e1ch. Pokud ov\u0161em nemaj\u00ed to \u0161t\u011bst\u00ed a setkaj\u00ed se s lidmi bez pochopen\u00ed, beznad\u011bj je opravdu to prav\u00e9 slovo.\u00a0Krom\u011b toho, \u017ee ochabuj\u00ed svaly na rukou, nohou a ostatn\u00edch \u010d\u00e1stech t\u011bla a \u010dlov\u011bk je postupem \u010dasu odk\u00e1z\u00e1n na voz\u00edk, pozd\u011bji na l\u016f\u017eko, pacienti maj\u00ed probl\u00e9my s \u0159e\u010d\u00ed, polyk\u00e1n\u00edm a d\u00fdch\u00e1n\u00edm. Nemoc tedy shroma\u017e\u010fuje v\u0161echny mo\u017en\u00e9 hendikepy, kter\u00e9 si jen m\u016f\u017eeme p\u0159edstavit. I z tohoto d\u016fvodu je velmi t\u011b\u017ek\u00e9 naj\u00edt odborn\u00edka, kter\u00fd by pacienta sledoval a dok\u00e1zal koordinovat sv\u00e9 kolegy z ostatn\u00edch odborn\u00fdch pracovi\u0161\u0165 tak, aby byly v\u0161echny pacientovy pot\u00ed\u017ee pr\u016fb\u011b\u017en\u011b monitorov\u00e1ny. Odborn\u00e1 p\u00e9\u010de je tak\u00e9 komplikovan\u00e1 z toho d\u016fvodu, \u017ee ka\u017ed\u00fd pacient a pr\u016fb\u011bh nemoci je ojedin\u011bl\u00fd, proto nelze l\u00e9\u010dbu aplikovat na v\u0161echny pacienty stejn\u011b.\u00a0Velmi d\u016fle\u017eit\u00fdm faktorem je psychika. Pom\u011brn\u011b hodn\u011b lid\u00ed, kte\u0159\u00ed se dozv\u00ed, \u017ee trp\u00ed t\u00edmto smrteln\u00fdm onemocn\u011bn\u00edm, se s t\u00edm nedok\u00e1\u017e\u00ed sm\u00ed\u0159it a sv\u016fj boj prohraj\u00ed p\u0159ed\u010dasn\u011b. I v \u010cesk\u00e9 republice v\u0161ak existuje hodn\u011b pacient\u016f, kte\u0159\u00ed se s touto nemoc\u00ed perou mnoho let a dok\u00e1\u017e\u00ed i d\u00edky sv\u00e9mu okol\u00ed \u017e\u00edt \u017eivot, kter\u00fd p\u0159ece jen stoj\u00ed za to. Nejzn\u00e1m\u011bj\u0161\u00edm pacientem s ALS je britsk\u00fd fyzik Stephen Hawking, jen\u017e s touto diagn\u00f3zou \u017eije ji\u017e v\u00edce ne\u017e 50 let a st\u00e1le se aktivn\u011b pod\u00edl\u00ed na v\u011bdeck\u00fdch projektech. Touto nemoc\u00ed trp\u011bl tak\u00e9 politik Stanislav Gross a state\u010dn\u011b s n\u00ed dosud bojuje fotbalista Mari\u00e1n \u010ci\u0161ovsk\u00fd.                                                                                                                                                                                                                                                                                                                                                                                        3.9\/5 - (10 votes)        "},{"@context":"https:\/\/schema.org\/","@type":"BreadcrumbList","itemListElement":[{"@type":"ListItem","position":1,"name":"Amyotrofick\u00e1 later\u00e1ln\u00ed skler\u00f3za je nemoc\u00ed, o kter\u00e9 nen\u00ed mnoho sly\u0161et","item":"https:\/\/www.durit.cz\/amyotroficka-lateralni-skleroza-je-nemoci-o-ktere-neni-mnoho-slyset\/#breadcrumbitem"}]}]